Janez Mate : My Encounter with the Guillain-Barré Syndrome
This book describes my experiences with the Guillain- Barré syndrom during the time of my hospitalisation at the Department of Neurology, and later during my rehabilitation at the University Rehabilitation Institute of the Republic of Slovenia – Soča. Especially during the second period I learned about experiences of fifteen other patients suffering from the same disease.
|Knjižnica Miklova hiša
|Matej Mate, Miran Mate, Jože Levstek, Stane Hafnar
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This book has been in the making for a year and a half. During the first six months the author directly experienced the Guillain-Barré syndrom, during his treatment and rehabilitation. During the next twelve months the rehabilitation process continued, and the last nine months of that period were also dedicated to writing. I travelled the path which many patients had travelled before me. Perhaps it is not a coincidece that this book saw the light of the day at the occasion of the hundredth anniversary of the first description of the Guillain-Barré syndrome.
The literature on Guillain- Barré syndrome in the Slovenian language is very limited, and it is rather difficult to get information about the onset of the disease, treatment, recovery and – most importantly – about dealing with the consequences of the disease. I have not been able to find any material giving experiences of the patients during the time of disease, and rehabilitation. As I would have appreciated especially additional information describing the direct experiences of patients, I decided to write about the journey I made, acompanied by GBS. I hope it will be a guide, or at least a kind of a travel ratio for people who are, or will be travelling the same journey.
Stane Hafnar, accompanying words: “The book is non-technical, but contains the professional knowledge accessible to laypersons; it is enriched with impressions, perceptions and personal observations. It is an accurate chronicle, and as such even a visually tangible diary, combining a personal or even a literary story with a manual for general use. It is a lament and a complaint, which ultimately gives comfort.”